And the answer is ….
MAD works for Caspian.
It really works well for Caspian.
What have I learned about transitioning from Classic Ketogenic to Modified Atkins that I can share with you?
1 It is moderate protein, not unlimited, an easy thing to forget but important.
For 5 weeks after the transition Caspian had 2 seizures. I was feeding Caspian a lot of protein. Then he fell apart in a crazy way. He then had 9 seizures in 14 days. Nasty.
I suspect that in those 5 weeks Caspian was using the extra protein for body repairs and growth. After my little Prince had grown all the excess protein wasn’t needed- which naturally played havoc with his ketone production, hence the fall apart.
2. Pace the Carbohydrates. Initially I was giving Caspian his carbohydrates three times a day- this I suspect also temporally interrupted his ketone production – thus making seizures a possibility. I now give him his carbs a little bit all day. (Two grams of carbs at a time).
3. Be suspicious. Beware the easily absorbed carbohydrates. Like rice milk & soymilk. Rice milk is low carb but I suspect would have a high glycemic index. Jasmine rice is more quickly absorbed than sugar- it has a faster impact than sugar on the blood stream! I removed this from Cas’ diet and I believe this is the true reason Caspian has had so few seizures in the last month. More than anything I am focusing on low glycaemic foods- vegetables. Caspian has dropped his topomax twice in the last three weeks; one tiny seizure was the result.
What I find amazing is that Caspian has had a little cold this week and not a single witnessed seizure. Preschool is amazed at his involvement and word power this week, isn’t that so cool?!
The transition off the Classic diet was liberating but definitely unnerving. I feel the precision of the Ketogenic diet is like a training ground. When you spend so many hours a week precisely measuring carbohydrates in foods and hunting for low carbohydrate options that your child likes it has an impact. The impact is imbedded knowledge of suitable low carb & high fat foods.
This means I now adlib with Caspian’s meals on the Modified Atkins with ease. Life is so much more fun!!!! What has your transition been like?