Well faithful travellers, you may be wondering where I have been? I have been to BLAND land and it was so boring there I did not feel like sending you a postcard.
Caspian and I took a small excursion to Spice city, accidental exposure to MSG mountain and the return journey was a disaster!!! Combine delicious, spicy exciting morsels with snot and you get misery in the thousandth degrees.
I chucked a tantrum on Wednesday, pronounced that it was all over. No more Ketogenic meals were going to be made by my hands, No, No, No, No! That beloved man of my mine took over and cranked up the fat and pumped out some meals and Caspian has improved. His behavior and speech picked up, his interaction with friends was spot on for 4. Obviously the ketogenic meals still work and are needed. This tantrum of mine was really about the necessity and ongoing validity of this diet for Caspian. Is it still serving a purpose? Yes. I shall trudge on .
My fellow parents, how often have you struggled with this diet yourselves? It is a relentless, somewhat cruel deprivation and I confess; I hate it. And yet, I frequently weep with Joy at the gradual steady healing my little man is undergoing. It is like being split in half, one side KNOWS with certainty the need for the restricted foods, the other side of me wails and fights the misery I feel I am putting him through, and the continuous work, work, work of meal preparations. Bit of a complainer aren’t I?
I’d love to know those of you parents travelling this road are going….
XXX Mary-Anne
Caspian's Table 
Oh I love to read your posts Mary-Anne and love your honesty. I can’t say I am traveling the same path as you but I’ll walk with you on your travels. You’ll never give up as you’re a Mum and that’s what we do for our kids, we’ll walk to the end of the earth and back (or perhaps jump over as Reepicheep).
Mary-Anne,
Thankfully due to a combination of Nora’s cooperation and Christy’s dedication in preparing diverse and tasty meals, for us the keto life is very routine now. It’s become normal.
Every now and then I am aware of the extra effort to feed her, but then I remind myself of the immeasurable benefit, and I remind myself to be happy that we can help her. The small annoyance of hounding her to finish her bedtime cream is nothing compared to the huge stress of relentless seizures.
And honestly there are many times I marvel at how well she eats. A typical meal for her may be olives, avocado, hot cocoa, butter and flax crackers, red pepper, ham and cream cheese. Sometimes when I am preparing her plate of food I want to make the same for myself.
Where the limitations of the diet are most felt are in the lack of spontaneity. We can’t jet off to any neighborhood cafe on a whim some afternoon. But with some effort and pre-planning we can still go to certain restaurants. Sushi has become a favorite because the salmon and edamame are very keto-friendly. But the lack of spontaneity is a small price to pay for now, and it won’t last forever.
Hang in there! It won’t last forever, and every keto day, every keto meal is a victory.
Ted
Hi there Mary Ann,
we`re also on the way, by now for 17months, and will be tehre for the 10years because of GLUT1DS… I struggle now because of christmas time and all its brings für healthy kids, BUT christmas time will probablyy be a time without seizures this year, so it`s worth while figuring out nasty recipies for keto-cookies…
KEEP ON!
Thanks so much for your kind words, I needed them this week!